Welcome Members!

Welcome to Traumatic Brain Injury Support Patient Community!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Traumatic Brain Injury is a dedicated patient-to-patient support community for families affected by Traumatic Brain Injury . Traumatic Brain Injury Support is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Traumatic Brain Injury.

If your family has been affected by Traumatic Brain Injury, consider Traumatic Brain Injury Support your second home. Traumatic Brain Injury Support, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

Traumatic brain injury (TBI), a form of acquired brain injury, occurs when a sudden trauma causes damage to the brain. TBI can result when the head suddenly and violently hits an object, or when an object pierces the skull and enters brain tissue.

This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.

Read More…

 

How is Ben’s Friends Different from Social Media and Other Support Sites?

 

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

We’re interested in you as a person, and in your struggles as a rare disease patient.  But we don’t want to know your name or where you live. We won’t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.  Your information is never shared, and your activity never tracked by adware.

When Ben’s Friends asks for the country and region you live in, that’s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.  That’s important when it comes to giving and getting support. Because we are all about support, and we’re all in this together..

Ben’s Friends: Safe and Supportive. 
And anonymous to keep it that way.

Why create an account?

Posts on the different Ben’s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you’re looking for but there are many things you won’t be able to do unless you create an account. These include:

Making your own posts. Although you’re able to find useful information just by reading other members’ posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won’t be possible unless you create a new user account.

Viewing other members’ profiles. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you’re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.

Sending private messages. Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.

Click here to create an account and join.

  • Looking For Your Traumatic Brain Injury Stories!
    by ModSupport on January 11, 2024

    @trust_level_0 Dear Traumatic Brain Injury Support Member, For over 10 years, the Ben’s Friends online rare patient communities, run & moderated by rare patients themselves, have been a source […]

  • Brain Damage at Birth
    by Ben_Munoz on December 18, 2023

    Brain injury occurs when cells in the brain are damaged or destroyed. Unfortunately, many children suffer from permanent brain damage at birth. Lean about common causes, early signs of brain damage […]

  • 7 Tips on Preventing Winter Sports Traumatic Brain Injury
    by BF_Writer on December 11, 2023

    Sascha Gallardo – January 23, 2023 When the temperature drops and the snow falls, hitting the ski slopes and ice skating rinks are on the minds of millions. But while these activities can be […]

  • 📢 Calling mothers of children with rare diseases of all ages
    by ModSupport on August 12, 2023

    Ben’s Friends has launched a new community for moms raising children with rare diseases and chronic conditions and we are inviting you to join Warrior Moms Living with Rare […]

  • Sleeping/eating
    by Grafix on July 23, 2023

    Hello all, I’m 58 days since my injury(tbi, broken vertebrae’s, and vertebral artery injury). Feel like up until last few days it’s been generally “smooth”. But recently I have had broken […]